A lot to report

Not done my blog for a while, a lot has happened in the past few weeks. We have just had a lovely weeks holiday in Bournemouth which has really helped us all feel more normal again.
Callum started to become unwell the week of the Jubilee, just a temperature but nothing else, on the Saturday he was poorly overnight and wouldn't eat or drink. On Sunday we were told to take him to hospital and he was dehydrated and they couldn't find anything else wrong. He stayed in for two nights and had to have a feeding tube put down, they discovered he had a bad ear infection which was causing everything else. They sent him home on Tuesday with antibiotics but he was still not eating. I was worried taking him home as he still seemed so poorly. We did our best to keep him drinking on Wednesday but he was sleepy all day so I took him back to drs, they told me to bring him back in the morning. He was no better in the morning so the dr sent us back to hospital. When we got there the nurse went through everything and tested his blood sugar which was very low at 1.6 it all happened very quickly after that with drs and nurses rushing around us, they had to get a drip in with sugary fluids and gave him some high sugar gel to boost his sugar levels, it was so frightening. We were then moved to a ward where they checked his blood sugar every hour, Thursday night felt the longest night of my life, I really thought the worst, by the morning his blood sugar had dropped again so they had to increase his sugar in his fluids, they also put a feeding tube down again to try and get his tummy used to eating again. We stayed in Friday night as well and his blood sugar levels became stable, on Saturday the drs said we were ok to take him home and explained that he has a condition which means when he is poorly he can't maintain his own blood sugar, we have got our own testing kit to use if he isn't eating or is poorly, and if it goes below 3 we have to give him the sugary glucose and take him straight into hospital, they have given us open access now.
It's taken a while to sink in and I feel like its another thing to worry about with Callum, we will get our heads around it but added to everything else it's just a lot to think about.
It's been such a traumatic time recently so our holiday really came at the right time, it's been nice to have a break from everything. It's hard coming back to letters from the hospital and specialists as its all very real again, We are still waiting for a date for Callum's grometts and biopsies as there's a problem with the funding for it, so got to sort that out now we are back too. I just hope that once the biopsies are done we will have better idea of what's causing all of Callum's problems.

Not how we planned our Jubilee

Unfortunately Callum had to go into hospital Sunday he was sick Saturday night and couldn't keep fluid down on Sunday and was really poorly, he had to have a tube down his nose and throat overnight to rehydrate him, Monday he was even worse and they discovered he had bad ear infection and as he has glue ear infection going into his tummy, so they gave him antibiotic injection and antihistamine. They sent him home yesterday with antibiotics. I took him back to drs earlier has not drinking much and high temperature again, I have to take him back in the morning. He is not eating but they said as long as he is drinking that's the most important thing at the moment. Fingers crossed for an improvement over night.
Ronnie has been so good, I stayed in at night with Callum and the Steve came in the morning so we were both there with Callum, ronnie had a lovely few days with our family and didn't miss out on anything so that was nice. He is such a kind little boy and said this morning I don't like it when my brothers poorly mummy xxxxx