Had a hard day today, Callum has changed groups at his special needs group, the realisation that things may always be hard for Callum has really set in with us. The specialists think his problems may be caused by either a genetic problem or brain problem. He has to have a muscle biopsy and skin biopsy when he has his grometts put in, they also want to take a mouth swab for his DNA to look at a specific chromosome. He went in a stander today for the first time and it broke my heart to see how much support he needs just to stand up. I am grateful for all the help and intervention he gets it's just so tough. We also have to start teaching him sign language as he's not saying anything and it will help him and us to communicate. We also have fortnightly visits from a lady who helps bring his development on through play. We have his shoes now as well which was for the purpose of going in the stander. I find it so difficult and almost feel like its happening to someone else, not that I would want it to, I suppose that's just my way of dealing it. The specialists have said that as he gets older it will be more obvious that he has problems because he is so delayed with his development.
I came out of his group today and bumped into someone I went to primary school with, I burst in tears and felt so bad afterwards she didn't mind I know, but it's hard to fight back these tears at the moment.
I suppose that for a long time we thought Callum would get better but as time goes on we think differently, and it's so sad to think of him at 8 or 9 or 20 and still having problems. All I know is that we will do whatever we can to make him happy and give him a great life.
We have had great piece of news last week, we won the appeal to get Ronnie into our first choice of school we are over the moon, it's such a massive weight of our minds and he's so excited too. It really did give us a boost. So on we go keeping positive and fighting back those tears xxxx
