Callum's appointments have continued and he went in and had his blood tests to check his hormones as he's not growing as he should. He had to stay in overnight as they wanted to monitor his blood sugar and tested it every 3 hours through the night. They put a drip in the next day and took blood every half an hour for a 3 hour period. That was tough, probably the hardest thing I've had to do with him do far, I know it needed to be done but each procedure is more distressing for him. We have a 4 week wait for these results. If he has a problem with hormones he will need an injection every day until he's in his 20's, if his hormones are ok then the reason he's not growing is because if the syndrome (whatever that may be) and they won't be able to do anything about it. We saw the paediatrician last week who told us the muscle biopsy came back clear which is great news x he told us that Callum will always have low muscle tone and things will always be hard for him, he will also need to wear splints when he walks. They also discovered he has a heart murmur which they think may be caused by his muscle tone so got to go back in two months about that. We are awaiting a walking frame with wheels to help him learn to walk. I really can't believe he's going to be 2 in December but, No matter how hard things get or how upsetting things are we are lucky to have Ronnie and Callum and I am going to enjoy every moment with them
Both xxxx
