Nearly Recovered

Doing really well with recovery from hysterectomy, able to drive now and only 8 more days until I can lift things, most importantly 8 days until I can pick Ronnie and Callum up again it's been torture!
Ronnie is doing really well sleeping till atleast 5:30 every night and is dry most nights too so that's great. He is doing really well at football, which Steve takes him to every Saturday morning, it's so nice to hear all about it from him when he gets back.
I took Callum to his group on Monday at the special needs nursery, he is making progress and has started pointing now which is fantastic. It's easier to know what he wants know as he points to his drink or a certain toy he wants to play with. He is definitely more interested in toys now as well.
We had an appointment about his squint on Thursday and it's no worse so that's good, we have to see a paediatric eye specialist in a few weeks to check everything. He has also been referred to a teaching advisor about his hearing so that will be helpful. We are going down to Bristol on Friday to see the ear surgeon to decide whether he should have grometts or hearing aids. He had more blood tests last week as well they are checking his thyroid again and checking his levels of minerals in his blood as some syndromes affect these levels and that could be the reason for his low muscle tone perhaps?
We took him to have his feet measured again today but they still haven't grown, so we bought him a nice new outfit instead!
We had the school placement offer for Ronnie last week and sadly we did not get any of our 4 choices do we are starting the appeal process soon. I do wish that we could have some good luck our way soon! I am doing my best to keep positive with it all, and i think when we know the exact cause of Callum's problems it will be much easier to manage. When this school business is sorted that will reduce the load as well. I know I stopped saying it but...... Fingers crossed with it all x

Highs and Lowd

Recovering well getting stronger again so that's great. Steves been home all this week and we really have had a lovely time altogether. We have had highs and lows but sharing the lows is always easier. On Tuesday Callum had his medical photos taken which left us feeling rather fed up, its not a nice thing to have to do but of course it will benefit Callum in the long run. They have sent the photos off and we now have to wait for the 5 specialists to get together and look at them and see what they come up with.
On Wednesday we took the boys to a big soft play place, they had a cafe so I was able to rest there while Steve played with the boys. We took them to the toddler part as soon as we got there as we thought they could play together in there. As soon as we got in there I suddenly realised that this would not work with Callum, I sat him down and was surrounded by lovely children, younger and older than callum crawling, walking, talking and interacting with each other and tears started rolling down my face, it was so heart breaking to see my darling son so isolated and helpless I have never felt so awful, I felt guilty almost for taking him there. Ronnie was having a great time which is what we want of course but it's ever so hard as they are brothers and I wanted them to do this together. In the end we decided that Callum could stay with me in his pushchair and Steve would take Ronnie for a big play up. Callum and I had a lovely time together playing with his rattles and things, he likes it if I put something on his head and laughs when it falls off! It's just I feel he is so isolated at the moment and separate from other things. Yes he is happy which I am so grateful for its just not what I had planned for, but all the time with Callum we realise that we have to adapt things to suit him and we will. I think not knowing what the future holds or indeed what the reason for all of his problems is makes it tougher all round. On a Positve note I couldn't ask for a more fantastic husband who makes all of this bearable, his support is fantastic Callum ronnie and I are so lucky to have him xxx

Recovering

Well, what an uncomfortable few days i have had, operation went well and was looked after very well in hospital. Came out last Thursday and am today finally starting to feel brighter in myself and not in so much pain. Just think in a few weeks, I will feel like a new woman.
Since home I have had so much help with the boys and everything round the house so, I really am very lucky.
Ronnie and Callum have been really good with it all and Ronnie is so kind he keeps doing things to make me better.
Had a bit of disappointment with Callum, we went to collect his new shoes on Saturday and when they put them on they were too big, they remeasured his feet and they were not on the scale. They had measured his feet incorrectly the last time we were there. In normal circumstances this would be frustrating but in ours, we found it quite upsetting. Onwards and upwards in 4 weeks they hopefully will have grown. We also saw the genetic specialist on Monday, he was really nice and went through everything with us, he has arranged to have some photos taken of his hands, feet and face and then five other specialist will then have a look and see if they have any ideas on any specific syndromes. He did say that it can take years before you find out the specific diagnosis. The main thing is Callum is a happy content little boy and he knows no different. We are concentrating on what he can do and keeping positive xx