Well what a week, Callum had his muscle and skin Biopsy and grometts last Thursday. He did really well and has recovered fully. We now have a 2 to 3 month wait for results. We had cheek biopsy results back which were clear so that was positive news.
Ronnies ear has been fine since his grommet was taken out two weeks ago do that's good. I took Ronnie for his appointment with the consultant about his toe walking this afternoon, he's been doing this ever since he started walking. He's had physio and exercises to do but nothing has worked. So today he has had half leg casts put on both legs to break the habit. These will need to be changed every week and remain on for 6 weeks. Poor little chap, he's been so good about it and taking it all in his stride. I honestly feel like I live at the hospital. It's not the best timing either with him just starting school and he's just joined a local football club. We will make the best of a difficult situation, and hope that this does the trick. Would love to know when and if things are going to get easier and less worrying xxx
Monday 24 September 2012
Tuesday 4 September 2012
Ronnies First Day at School
Today was Ronnies first day at school, I can't believe he's so grown up! He looked lovely in his uniform and went in ok to start with but did cry when we left. It was a long wait to collect him as he does full days straight away. I didn't need to worry as when I picked him up he came running out and was so happy I am so pleased, we are so lucky to have got him into that school with all his friends x x
Ronnies ears have been causing him problems again and he ended up in hospital overnight with it a few weeks ago. We saw the specialist yesterday and he needs to have the grommet removed as its the cause of the continuos infections. He needs a little operation for that to be done, not very nice for him but will sort the problem out.
Callum started back at his special group today and we tried to do some painting with him but he got very upset when he got paint on his hands, he's very sensitive to textures but we will keep trying. He has progressed well recently and has started to sit up on his own and crawling a bit too. Both are fantastic to see and it's nice for him to be able to sit up himself now too. We are nearly 5 weeks into the 6-8 week wait for the results of his cheek swab, every time the phone rings my heart sinks. He's going to Bristol for his grommets and muscle and skin biopsies on 20th of this month do will be a relief to get that over with.
Still trying to keep positive and hopeful that whatever it is causing Callum's problems won't be to bad.
Very lucky to have such lovely boys and so proud of how well Ronnie did today at school xxx
Ronnies ears have been causing him problems again and he ended up in hospital overnight with it a few weeks ago. We saw the specialist yesterday and he needs to have the grommet removed as its the cause of the continuos infections. He needs a little operation for that to be done, not very nice for him but will sort the problem out.
Callum started back at his special group today and we tried to do some painting with him but he got very upset when he got paint on his hands, he's very sensitive to textures but we will keep trying. He has progressed well recently and has started to sit up on his own and crawling a bit too. Both are fantastic to see and it's nice for him to be able to sit up himself now too. We are nearly 5 weeks into the 6-8 week wait for the results of his cheek swab, every time the phone rings my heart sinks. He's going to Bristol for his grommets and muscle and skin biopsies on 20th of this month do will be a relief to get that over with.
Still trying to keep positive and hopeful that whatever it is causing Callum's problems won't be to bad.
Very lucky to have such lovely boys and so proud of how well Ronnie did today at school xxx
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