Tuesday 31 January 2012

Good day

Felt better today, we all had a great sleep, Ronnie slept from seven till seven and was dry all night, so pleased thats the longest he has slept till for well over a year! I took the bots to play group - it was the first time that I have been when Callum was awake or awake but to tired (he gets tired as he has low muscle tone in his top half) Ronnie was playing with a toy which you put a lady bird on and it slides down the toy, I had Callum propped up sitting down leaning on me and he started watching Ronnie playing with the toy and another little girl came to play and he started watching her too, each time Ronnie put the ladybird down the slide Callim clapped....amazing! We sat down and did some singing afterwards at the end of playgroup, and Ronnie went and got us all a musical instrument each and we sat and sang, Ronnie was singing all the words and Callum was banging his tamborine and looking up at me and smiling.... a truly magical moment. Sounds like nothing but to me it was fantastic because for the first time this morning I felt like i was doing what I imagined I would be doing with my two boys and I forgot about all the appointments and worry and enjoyed playing with my boys without a massive weight around my neck dragging everything down. Seeing them interacting together even for a short time was so nice, nice because it was normal and normal for us as a family is not a word I would use to describe things at the moment. As fantastic and amazing this morning was it brought it home to me today how hard, sad and upsetting life is for us at this moment in time, and I just wish that things were normal all day every day with Callum and I hope in the future they will be x x

Shuffle Challange

I have been tempted into doing the shuffle challange by @farfromhomemama so here goes; Foo fighters - Walk Example - Changed The Way You Kiss Me Pendulum - Propane Nightmares What a mixture, I think I have come out of this reasonably well? Now to pass the ChallangeI onto 3 more people @mrsjenallan @allabouttheboys @jobedo68 Lydia x x x x

Monday 30 January 2012

Bit of a non starter

Not started week well, had a little operation last Tuesday and have now got an infection. Did not feel well enough to take Callum to his group today. Hopefully will make it next week as long as Ronnie is recovering ok. Ronnie did well with sleeping, it was his first night without wearing a nappy to bed so he woke at four a bit wet but he went back off about an hour later after getting up four times, but each time I put him straight back to bed, so pleased that he went back off on his own eventually. I have put a cd player in his room to listen to stories on to help he go back to sleep but I have to say his favourite at the moment is classic fm! It makes me laugh when I go in to make his bed in the morning and classic fm is still blaring out. Callum was ok today had a little play with Ronnie and I even saw them laughing at each other, its nice to see snippets Of what things will be like in the future with them both. Our heating stopped working in the night which was rather chilly, luckily Ronnie and Callum were not cold and an engineer came this morning to fix it. Fingers crossed it stays that way, I can't stand being cold. Hopefully I will feel better tomorrow I don't like not firing on all cylinders.

Sunday 29 January 2012

Lovely Sunday

Great day today, Ronnie slept until 6:10 in his own bed so that was a great start for us, he has been waking as early as 4 And not going back off, or waking for two or three hours at a time in the middle of the night before going back off, so not being exhausted is always welcome. Callum sleeps very well. He wakes and just lies in his cot gurgling until we go in. Ronnie helped us tidy up the garden this morning, I am also new to this as well and am learning things all the time - I now know to prune/cut back shrubs before the frosty weather comes! Had a lovely Sunday lunch with our family, and Callum had his first liquidized sunday lunch and treacle pudding, he loved it. Ronnie enoyed it too and polished off all the carrotts after i explained how good they are for helping you see in the dark. We all spent some time outside in the fresh air which is so good for us and the boys, it also gives Ronnie chance to run off some of his energy, we are struggling with just how much energy he does have at the moment. Callum had a good hour of laughing and playing with us all today and has started repeating sounds to make us laugh, blowing raspberries seems to be his favourite. He also really watched the television properly, since having his glasses he has started paying more attention to it now which is positive. All in all a good day, got another eventful week approaching, Ronnie has to have little operation on Friday to put grommets back in both ears again and possibly have his adenoids out, will be glad when that's over and done with. Got Callum's special group tomorrow afternoon, he will enjoy that, will work on more sitting with the physio. Must always remember to think positive, things could always be much worse I suppose... Fingers crossed for another sleep filled night.

Saturday 28 January 2012

My first blog 28th January 2011

Since getting an iPad for Christmas, I have been using twitter a lot more and have started reading other people's blogs, and today I thought why not set up my own? So here goes, thought I would just write with about my days and how life is through my eyes. Today is Saturday, I love Saturdays, Ronnie my eldest has Football every Saturday morning which Steve takes him too, so I have just over an hour on my own with Callum. Callum has been sleeping a lot again lately so he goes for sleep and I caught up on a weeks house work. Loved it when Ronnie came home and started showing me all the things he had learnt, star jumps, squats and push ups he is so enthuasitic and you can see that he is picking new things up each week. Had my hair coloured and cut this afternoon was some much needed pampering after a difficult week. Hoping that Ronnie sleeps through tonight, we Have had about a month of better nights after a year of waking every night, this all started after Callum was born. It really has not been an easy twelve months. I had an idea of how my life would be and it has turned out so differently, I don't think anything can prepare you for having a child with disabilities. Days are filled with appointments, exercises, worries and what ifs at the momment. As Callum is my second I assumed I would do the same with him as I did with Ronnie - it is so different. My days are happy I love being with the boys it is just a different type of happiness, different to what I imagined. More tomorrow x x x