Family Life

Well ..... It's been a long time since my last blog - I stopped blogging as it all became to much to bear with Callum, I struggled, we struggled, our family struggled but, we got through it and continue to do so.  Callum had his Gastrostomy Tube in July 2014, it was a difficult decision to make as although the nasal gastric tube was horrid for Callum, it was temporary and moving to a Gastrostomy Tube seemed like a permanent solution.  That word solution though is the positive part of it all, to have a solution to something is what we look for when tackling  life's problems. I have come to realise that although it's a very different life to what we planned it's about managing it and finding the positive side to everything.  Whilst it took me a long time to come to terms with  Callum's Gastrostomy tube and get used to him having a tube coming out of his tummy it has kept him quite stable.  There have been too many hospital admissions to remember since my last blog and each one seems to be more scary and draining than the last but, we get through it and keep getting on with it.  The disruption to family life seems more noticeable now which I know is down to Ronnie getting older, he's 7 now and is at junior school. As a parent you naturally shield your children from traumatic events or upsetting situations but when those things are happening in your house and it's happening to their sibling it is impossible to do this, it leaves me feeling like I've let Ronnie down and I feel so guilty that he has seen countless paramedics rush into the house to stabilise Callum and then rush him to hospital in an ambulance with me going to, not knowing when Callum and me will be back home again.  But this is our family life, and we all have to manage it as a family. We have fantastic families who help us so much especially when Callum's in hospital, so at least Romnie has a routine which he is familiar with during these periods. Without them I know we couldn't do it.