It's a No then

So much has happened since last post, Callum's doing really well physically and amazed us all by taking his first few steps on his own, without his walking frame in April and week by week he progressed to what we have now.... A lovely little boy who can walk! Fantastic and amazing all at the same time, this has opened up so many doors for him, and us as a family we are thrilled with his progress.  

Sadly we still don't have a diagnosis, we've been seen by metabolic specialists in Bristol who are running more blood tests, he's now on a metabolic regime which we add to each drink to help maintain his blood sugar, as since he's been walking his blood sugar levels have been dipping a lot as he's using more energy.  We also saw a neurologist at great ormond street who thinks part of his brain may not have developed properly so they want to do another MRI of his brain under general anaesthetic and do a lumbar puncture at the same time. 

Callum still attends the special needs group weekly and he has just had a place turned down at a special needs school to start play group sessions.  I'm so disappointed and cannot understand how Callum will manage in a mainstream playground, yes he will have one to one support, but his needs are so complex and he doesn't learn in the same way as others and has fixations on things which take up a lot of time.  I don't want my son to be the different one, I think as times going on I am accepting that he will always be different.  

What I always remember is that he's happy and enjoys everything he does and vice versa for anyone who is involved with Callum.

The next phase of battling for Callum commences now, I think because Callum is undiagnosed it's almost a grey area where help is concerned because its unknown what the future holds and whether he will continue to progress in the same way.  Wish me luck!