Overload

Today we had an appointment for Callum with the Metabolic Team in Bristol. We've been concerned about how unstable his blood sugars have been since he started walking.  He has to have a metabolic supplement in his drinks in order to maintain it throughout the day.  Callum will only eat certain foods ( mainly orange coloured food)! So it makes a difficult situation worse.

They want Callum to come back into Bristol hospital for 2 nights on Wednesday to have Continued Glucose Monitoring for 48hours.  This involves inserting a device, like an implant into his arm, they then have to put a plaster cast on his arm to keep it in place.  his blood sugar will then be continually monitored and tracked.  While he is on the ward they have also arranged for a scan of his liver to be done as its been enlarged for a while, they also want to get someone from the eye clinic to check the back of eyes.

A lot to take in at one time.

It's so difficult as I know it all needs doing but I'm worried what they will find out...

It's hard because I feel  like I'm abandoning Ronnie again!  Steve will stay at home with Ronnie so he doesn't get unsettled so at least one of us can be with each of

them!

As Ronnies getting older he does pick up on things with Callum and gets so upset when he's in hospital. I think lots of FaceTime is in order so the brothers can see each other!

I feel so anxious about it all x